I was lucky enough to have my film, Benevolent Neglect, reviewed by national best selling author and mental health advocate, Pete Earley. Pete knew my family’s story somewhat, from when my mom was living with me in Modesto. As a way to raise awareness about our plight and to possibly have people at the ready to help me shame local government to help my mom, I had asked Pete to run a couple of my blog posts on his blog. He obliged.
I was hoping Pete would like my film. I wasn’t expecting him to give it such a glowing review, though. I’m so happy he did. Mom would be proud of me, for sure. Here are some excerpts:
“A Modesto police officer refuses to involuntary commit Josie so she can go to the hospital even though she is clearly a danger to herself. Why? Because she is able to tell him what day and month it is, along with the name of her street. A hospital supervisor ignores Estrada’s pleas even though his mother has nearly died because voices are telling her not to take her diabetes medication. Why? Because Josie wants to be discharged and the supervisor doesn’t want responsibility for her. A California Department of Mental Health employee rebuffs Estrada when he says his mom has been kicked out of so many apartments, she now is homeless. Why? Because she is living in her car and therefore has a roof over her head.”
“All of us rejoice when we read accounts about individuals, such as my son Kevin, who get treatment and the tools needed to control the symptoms of their illnesses and do well in life. I believe most Americans with mental illnesses can but Estrada’s film reminds us that getting that help often proves impossible.”
It took me longer than I wanted, but the first cut of my film, Benevolent Neglect, is completed. I’m circulating it to a small group of people for feedback, but plan on being completely done by the end of August. I wanted to share the news and opening scene with my “followers” on here. You can view it below. Thanks for the support, especially to those of you who have been following my blog for some time now. It never got the attention I would have liked it to, but every visitor and follower mean a lot. I know the story has the potential to resonate with many more, so that’s why I decided to make a film. Feedback, so far, has been very positive.
(This is a revision to a post I wrote in December 2016. It lost its focus halfway through, I recently realized.)
The end of the year holidays and winter cold were some of the hardest times for me and my family, since around 2010. Since then, my mom’s housing was unstable at best. The worst of it was punctuated by her being effectively homeless for two of those years, 2010-2012. In that time period, very short housing stints aside, she primarily lived in a car.
I’d do my best to spend Thanksgiving and Christmas with her, regardless of her immediate living situation. From the Bay Area, I’d drive down to meet her in Bakersfield or Fresno, take her to Marie Callender’s, her preferred restaurant choice, and usually put her up in a hotel room, so I could spend extra time with her.
I’d, also, take her shopping for some clothes and undergarments. She’d regularly have minimal clothing. Clothes that she’d buy or I’d buy for her would, typically, disappear within a couple of months.
She’d claim people would steal them from her car or from the places she was living in. I knew, though, that she probably threw them out. That was her modus operandi, after all. When pressed enough with questions, she’d say they became contaminated with toxins or spoiled by evil spirits. “The devils tried them on!” she’d exclaim.
This is what the holidays were for me. There was no real respite or joy from my time off of work. It caused me immense emotional pain to visit my mom, since I knew my mom preferred to live with either me or my sister. I despised the system for her feeling abandoned and/or unloved.
We had tried to care for her, of course, in the past. Me, in San Francisco, in the summer of 2009. My sister, for a few months, in San Diego in 2005. But it proved to be too difficult and stressful.
My mom, unfortunately, refused to accept psychiatric treatment. While she had her “good days” and could appear functioning or “normal,” going back to at least 2009, I could discern she was in a psychotic state a majority of the time.
Delusions were definitely there most of the time. She believed and openly claimed people and the F.B.I were spying on her and following her. She, also, experienced hallucinations. The “good voices” were the “Gods.” The “evil voices” were the “devils and witches.” She would “talk to herself” for hours, including throughout the night, at times. Interestingly, in more recent years, she learned to talk to herself quietly, outside of acute episodes. If I couldn’t hear her, I could still see her lips move.
Her medical and psychiatric conditions would both deteriorate over the years, from her not being able to take adequate care of herself. In fact, beginning in around 2014, hospitalizations would become a regular occurrence. In my estimation, she’d be hospitalized every two months, on average.
By this time, she had developed congestive heart failure, cataracts and a schwannoma (a “benign” brain tumor), to go along with her diabetes. Like clockwork, she’d regularly stop taking her various medications, which would then exacerbate her medical problems. Her CHF would cause breathing/respiratory problems and her glucose level would become life threatening, often times reaching over 400! In 2015, this would culminate in my mom and I spending our Christmas in a hospital. She would be intubated for four days, including Christmas day.
By then, I had had enough. I couldn’t take seeing my mama’s health deteriorate, particularly her physical health. At only 63 years old, she’d have to walk with a cane and, sometimes, a walker. There were even times when she had to use a wheelchair.
I remember the first time I saw her in one. She looked so feeble and dejected, with her head hung down and food on her shirt. My mom was prideful, beautiful and strong! Despite all she was going through, she’d still do her best to assure me she was doing OK and getting better, when I’d inquire about her condition/situation on a visit or on the phone.
In mid-2015, I decided to start looking for housing for my mom and I. It took me longer than it should have. One place I secured, in December of 2015, fell through when the dishwasher sprung a leak and flooded the floors, the very first week I moved in. When I began my search, I certainly didn’t think I’d end up in Modesto. I signed the lease for a nice single family home in mid-February 2016 and moved mom in the following week.
As difficult as most of this past year has been living with my mom, I find much peace and consolation in knowing she’s physically safe. In the least, I don’t have to spend any sleepless night worrying about where and how she is, like I used to before. It hit freezing temperatures for the first time this winter this past week. Letters my mom would write to me, exclaiming how cold it was living in the car, have given way to complaints that the house is too cold at 65 degrees.
Tomorrow is Christmas and my mom has been able to enjoy her first Christmas tree in about ten years. She’ll, also, have presents to unwrap and a delicious meal made by our friend, Shari. She’s still greatly distressed psychiatrically, but I have, more or less, been able to help medically stabilize her. She takes her medicines and goes to all her doctor appointments, mostly. For me, my blood pressure is the best it has been in years. For these things, we are grateful.
(My beautiful mama passed away in late February last year. While she was weaker, from stage 4 kidney disease, and more aloof in her last months, I did the best I could to make sure she had a good Thanksgiving and Christmas, nonetheless. She was, of course, greatly missed this past holiday season. I love you mom! Happy New Year!)